We aim to promote the welfare of all persons with haemophilia and similar bleeding disorders in South Africa and elsewhere. We hope it will help provide a better understanding of this inherited, lifelong bleeding disorder which affects males almost exclusively.
Haemophilia is a rare genetic bleeding disorder - a medical condition in which the ability of the blood to clot is severely reduced, causing the sufferer to bleed severely (internally and externally) from even a slight injury. The condition is typically caused by a hereditary lack of a coagulation factor, most often factor VIII
1 in 10 000 children in South Africa are born with this. If diagnosed early a sufferer can live an almost normal life. Yet if left undiagnosed and untreated, this condition can lead to permanent disability and even death. In the more rural areas of South Africa there are many boys whose quality of life are deeply affected because of lack of knowledge and awareness of Haemophilia